Each year, about 35,000 newborns (one of every 125) are diagnosed with a congenital heart disease. According to the March of Dimes, congenital heart disease is the most common birth defect, and the leading cause of birth defect-related deaths. For parents receiving their child’s diagnosis of pediatric congenital heart disease, the situation is complicated by a lack of information, resources and support for the surgeries and hospital visits that are to come.

 

Recent News

Being a Blessing by Trent Hamilton

24 Apr 2014 19:50:54 Z

As we speed into the holiday season, many of us take a few moments to think about those who are less fortunate or are in need.  During this time, some people volunteer their time at a shelter or soup kitchen, … Continue reading

Hope Made of Glass

24 Apr 2014 19:50:54 Z

My family participates in the CHD support group at Medical City Children’s Hospital, called Amazing Little Hearts. Our group meets each month to share stories, hear doctors and others speak about CHD topics, fellowship, and support each other. Occasionally, we … Continue reading

Finding our purpose

24 Apr 2014 19:50:54 Z

By Andrea Peters Over the past year I have come to realize that I’m questioning lots of things around Christianity and God. This is not because I doubt that God exists but because I feel it’s hard to see the good … Continue reading

CHD kids and School Special Services

24 Apr 2014 19:50:54 Z

Several people in our CHD support group have recently had questions about getting special services for the kids who are starting school this year. Specifically, we have been discussing the differences between Special Education services through the Individuals with Disabilities … Continue reading

Back to school with CHD kids

24 Apr 2014 19:50:54 Z

One of our topics this week was getting CHD kids ready or back to school.  With such wonderful responses and messages we though it would make a great stand alone entry for our blog for everyone’s benefit.  Here are some … Continue reading

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From the Heart

Thank You

Sat, 14 Sep 2013 16:20:06 +0000

Three years ago, today, Sarah and I were struggling through feelings of helplessness and hopelessness. We had been up all night after Bowen’s cardiac arrest, and though we had joy …

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Happy Birthday Bowen!

Mon, 09 Sep 2013 04:02:41 +0000

He looks so peaceful when he sleeps. Sometimes we just sit and look at his little white legs and blue toes poking through those brightly colored little boy briefs, and …

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Good Reports

Sat, 13 Apr 2013 01:12:58 +0000

In our last post I mentioned that we were going to take Bowen for his six month check-up this week. On Monday we made the familiar drive up 23 North …

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Easter Weekend

Tue, 02 Apr 2013 02:15:07 +0000

I hope you all had a wonderful Easter weekend. The band and I spent last week in Australia, but we were fortunate enough to make it home just in time …

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A Post From Aunt Hannah

Mon, 18 Feb 2013 23:17:26 +0000

The other day Sarah’s sister, Hannah, sent me something she wrote on Valentine’s Day.  Just like many of you, she’s itching to see an update on Bowen’s Heart.  He’s been …

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Mission
To share God’s love by providing education, support, connections, and innovation for the families of a child living with pediatric congenital heart disease—without boundaries of faith, culture, or economic standing.
Copyright 2012 by Whole Hearts Foundation